Monday, April 29, 2013

Looks Can Be Deceiving...

They say don't judge a book by its cover, and I'm a perfect example..
Just because I can grin and bear it, and walk around with a smile on my face, don't think for one second I'm not in pain or struggling inside.
I may not look like I'm "ill", but my pain is VERY real. So please don't discount my suffering because I can paste a smile on my face...it just means I'm stronger than you give me credit for.

Tuesday, April 16, 2013

Speedbumps and Potholes

So media doesn't want to cover my story because I can't get a Dr here to acknowledge and validate what I'm going through as far as my symptoms go and the need for surgery. They feel that it's me promoting me, instead of me needing to raise mad money for surgery.
My comments:
If I could find someone here to acknowledge and validate this, I wouldn't have the need to raise so much money for a surgery in a foreign country.
I know it's difficult for so many people to grasp, but if they walked in my shoes and dealt with what I've dealt with for a fraction of the time I have, they would understand.
This is a relatively unknown and extremely unacknowledged issue that I'm plagued with currently. Trying to get someone in the medical profession to recognize this as an issue is harder than finding a needle in a haystack. It has most definitely been a bumpy journey... and I'm riding on rims through this jungle of speedbumps and potholes.

Saturday, April 13, 2013

Sickness sucks

Hoping that this sore throat, body aches and chills go away and don't progress into a fever... I don't think I can handle that right now. Every time I've had a fever with this thing in my brain, the pressure in my head escalates to -please shoot me and put me out of my misery- pain. And I have an unusually high pain tolerance, if that tells you anything.
Being sick sucks anyway, being sick with increased intracranial pressure from a stupid cyst in your brain sucks worse.

Friday, April 5, 2013

Someone Pass the Ice Pick..?

Days like these last few are the rough ones. Mad head pressure, very dizzy, and visual disturbances like crazy...non stop. Makes me wish someone would just take an ice pick to my head and let the pressure out...
I know there's an end in sight, but it still seems so far away. I'm hoping this lets up a little soon. I have things I need to get done and can't do them like this. Few understand what it feels like. And because when you look at me,I don't appear ill or injured tangibly, it becomes difficult for others to grasp the magnitude of this type of suffering...