Other than the vertigo (which is constant), I developed balance issues, severe and constant headaches, eye pain and fatigue, hair loss (I'm talking about patches of hair missing,as well as thinning), intermittent nausea, visual disturbances (lightning flashes, problems focusing), depth perception issues. memory and cognitive problems, along with other minor things that I was unaware of at the time could be contributed to the cyst.
Now, seven months after the initial discovery, my symptoms have progressively gotten worse. the vertigo is still there all the time, I've finally been diagnosed with Ataxia for balance/walking issues, my headaches which are constant went from no less than a 5 to no less than an 8 and have turned into more constant head pressure (like a basketball being pumped up inside your head, or like wearing a helmet 3 sizes too small) instead of headaches, my eyes feel like someone is squeezing them from behind and lights hurt them, it causes pain to look in any direction, but especially up, the lightning flashes are more frequent and more intense, my vision goes from normal to tunnel and back with my heartbeat when I cough/sneeze/blow my nose/strain of any kind, focusing is like a digital camera-blurry to focused, but when I focus on something smaller my eyes are more jerking to the side uncontrollably, my depth perception is worse causing me to either drop or run into things quite often, peripheral vision is greying/blurred and feels like things are closing in on me all the time, memory problems are worse and am becoming more dyslexic, I have erratic sleep cycles and am always tired, my menstrual cycle is completely screwed up, I've been swallowing wrong way too often to be comfortable with it, I've had trouble with my speech (slur/stutter), I've become extremely irritable and impatient, have trouble regulating body temperature, and am very lethargic. I can no longer lay flat as the pressure in my head builds and is so painful, it often wakes me up.
One of the major issues I discovered was when I had a fever, was my head pressure and pain were so excruciating, I just wanted someone to stab me in the head with an ice pick! Turns out that if you have increased intracranial pressure and you get a fever, it causes the pressure in your head to rise significantly. Like quadruple, significantly. Like if someone doesn't chop your head off soon to end the pain you will spontaneously combust, significantly...
Problem is, neurologists and other Dr's don't believe that what you're going through is related to the cyst, but try to blame it on stress, anxiety, or you being a hypochondriac. I've been told by multiple Dr's that I need a psych eval, that I'm creating or making up my symptoms. I ask you, what would it benefit me to make up these issues? Do they honestly think that I WANT to feel like this all day every day? Are they out of their minds?! Who WANTS to live like this!?!
Hi there, I realise this was some time ago, but hopefully you still have access to this account.
ReplyDeleteI was just wondering how you went as I have a 4cm Pineal Cyst and have many of the same symptoms as you.
Would be keen to hear from you :)
Thanks,
Fay
Hi there.
Delete4CM or 4MM cyst, the largest I've seen is just under 3cm.
There's a group on Facebook with a bunch of us from all over the world suffering together with the same thing, if you want added support. Research articles and more can be accessed there.
I've still got my cyst, I gave up trying to get a Dr to believe me....