Where Everybody Knows Your Name..

While the majority of friends and family support me and understand to a degree where I'm at, there is much to be said to be surrounded by those who are struggling and suffering with the exact same thing you are. I'm lucky enough to have found a family of cyst-ers (and brothers, tho there aren't as many guys) on Facebook where I'm free to be me and not hold back when it comes to this infuriating intruder. Another place to call 'HOME'.
I absolutely love my family and friends outside of this group, and while their support is immeasurable and priceless, it's just not the same as someone who can justifiably understand exactly what's going on with you. I don't know what I'd do without either group of people in my life right now... They all mean so much to me, and while I forget to always express my gratitude, I sincerely hope they all know how grateful I am to have them in my life!

The ones I'm trying to avoid are the ones who tell me ...maybe you should listen to the Dr's, they can't ALL be wrong if they're ALL saying the same thing..... C'mon now. ANYONE who's known me for any duration before this started KNOWS this is not who I am. I don't have any quality of life. I don't get to go out with friends because of  balance issues (darkness, crowds, fast/unpredictable movements...all make it worse)... No movies, no bars, no long drives, nothing fun.
My body doesn't do "normal" or "average" (hell, neither do I, but that's another story for another day..). And, if you're not going through this yourself...SHUT UP! I just don't need to hear the same things from your mouths, as the Dr's! This is a rare condition, extremely uncommon, not as simple as a broken bone or scraped knee... it's in a part of the body that is vastly misunderstood and relatively unknown. So, while I appreciate the "support", unless YOU can tell me you know the ins and outs of the human brain and it's functioning capacity better than a neurologist, I really don't want to hear "maybe the Dr's are right"... Show me your degree and we'll talk..
Until then, I'm glad I've got my group of cyst-ers, my home away from home, the place where everyone knows my name.
But I digress...